Thursday, April 22, 2010

Havasupai Indians and the Ethical Use of Data

The recent settlement between Arizona State University and the Havasupai Indian tribe is calling attention to (and perhaps challenging) the ideas of informed consent. While I'm sure there are arguments to be made supporting both sides of this case, regardless of your position this is an excellent reminder that there are people's lives behind the alleles in our spreadsheets and PED files.

http://www.nytimes.com/2010/04/22/us/22dna.html

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Getting Genetics Done by Stephen Turner is licensed under a Creative Commons Attribution-NonCommercial 3.0 Unported License.